Monday, December 31, 2018

If I keep walking, I won’t forget to remember



        “Just 6 months of walking may reverse cognitive decline”, finds a recent study reported in the American Journal of Neurology. Imagine that! 

       We don’t need yet another study to know that physical movement contributes to overall health and wellness, especially if it’s done in clean, fresh air. Unless we’re living on the moon, not lost on us is that we  don’t spend enough time outside and today’s children are at risk of a range of health-related conditions that can be prevented if they’d just prise themselves away from technology and get outside and play. That’s what children are supposed to do, right?

       Even those such as I, with challenges to mobility, appreciate that if we don’t move it, we lose it. In the course of a day, I get in a lot of walking - all of it purposeful. I have places to go and things to do, in and around my home. Winter weather keeps me inside most of the time but I’m far from sedentary. My outside time is most assuredly purposeful, clearing piddle paths for the dogs — one at the front of the house, outside the garage, and another inside their pen, clearing off the ramp that goes down into it and then shovelling a short path so they’ll actually get off the porch! They should be getting down on their hairy little knees and thanking God that I haven’t fallen on my face into a snow bank. Should that happen, their lives and my own would potentially be inextricably changed for ever.

       With 2019 will be my coming of age. I’ll be a certificate of authenticity stamped senior citizen. The big 65! To sustain any sort of fall down and go boom episode could mean the difference between living independently or becoming a nursing home resident long before my time. My goal is to avoid that lifestyle for as long as possible, if not entirely. Because I’ve spent a number of years renovating/
redesigning/reconfiguring in and around my current home to make it functional and safe, I’d be hard-pressed to move. Moving to the city, however, would be an ideal solution to a range of growing problems, though another way to resolve the situation would be to have a housemate. Co-housing makes sense. That way, given my advancing age, I could still ‘walk this way’ in familiar surroundings and have someone with whom to interact on a daily basis.

       Purposeful walking and its concurrent brain training is critical to someone like me, already living with a neurological insult. Keeping the brain fine tuned through movement goes a long way to ensuring that my legs will be able to continue patterning the movements taught to me over many years in childhood.

       During the colder weather, beginning in late October and going through March, I keep my brain and body in shape by stair climbing. Real stairs, people!


       Four times a day, at 6 hour intervals, I go to the den to put compressed wood bricks in the stove. The first set of stairs, from the living room has a railing on either side. The stairs going to the den have a railing on one side; medical grade grab bars have been strategically place on the wall spaces just above my head so that I may make the trek safely. 



       Years of practice in knowing where to position my hands on any given surfaces has allowed me to confidently move about. People who have watched me in action find that it’s all very fluid/seamless. Stair climbing is a challenge because I cannot lift my foot sufficiently to execute the steps up, up, up. I essentially have to swing my foot onto the step and then pull myself along. 

       A series of exercises I’ve done for years without assistance continue to ensure my upright mobility. The set of range of motion exercises undertaken with me by the team from Extra-Mural were ones that I could not and will not be able to do on my own. Once we’re into the warm weather, there will be another round of scheduled visits to work my legs so I may continue to go up and down the stairs. So that I may safely be able to put food dishes on the floor, and  to tether the dogs at the laundry room door. Yup! Having a pet keeps me healthy and on the move. Memories are made of this.

Carla MacInnis Rockwell is a freelance writer and disability rights advocate living outside Fredericton, NB with her aging Australian silky terrier and a rambunctious Maltese. She can be reached via email at carmacrockwell@xplornet.ca 

Monday, December 17, 2018

Adults can set the path to prevent bullying



December 17, 2018 



Bullying continues to pose risk to both the bullied and the bully and it’s no stretch to say that the immediacy of the internet and the gratification it provides is cause for alarm.  “Am I pretty enough?”  “Am I smart enough?” “Oh, look, I got a new dress. I must post a pic of it so all my Facebook friends may admire it.” If you don’t register enough ‘likes’, you’re at risk of being bullied. Sad but true.

What happens once the rush, the thrill is gone?  Many of us who grew up in vastly different, less stressful times have thoughts on how to curb bullying. Unplug! Have real, meaningful conversations with your children and grandchildren about the impact of bullying. Teachers have opportunity to open the door wide to dialogue about how bullying is affecting the students who are in their care for several hours each day, 5 days a week. Conversation is cathartic.

While developing this commentary, I chatted with one of my childhood friends, Nancy (Giberson) Everett, a long-time teacher in Stanley. Her youngest son, Jesse, now 30, lives with challenges to daily living; both Jesse and I were diagnosed with cerebral palsy as youngsters but neither of us fully fits the profile; ours were  ‘umbrella’ diagnoses.



“Jesse was so fortunate to have older siblings who would have beaten the living crap out of anyone who hurt him in any way; a best friend in high school, David Sparkes, ate lunch with him and sat beside him in all his classes. Also, because Jesse was with the same group of kids forever, they were just ‘used’ to him.” Nancy goes on to say that “ a supply teacher at the school who graduated with Jesse said recently that she didn't really ever think of Jesse as having a disability when he was in school.” 

Nancy went on to reminisce about our own childhood to say — “I think that is how I saw you as my neighbour friend; you were a girl who I could play with and spend time with instead of boys all the time.  I never thought of you as having any sort of disability — we just figured out ways that we could do stuff together without the boys.  Looking back, I didn’t see you as having a disability; I remember playing with your Barbies, bike rides to the drugstore, skipping in the yard.  Those are the memories I have.”

As for myself, I remember Nancy teaching me how to skip rope, my knees banging together with each tiny jump off the ground. Bruised knees featured prominently in my childhood.

Our mothers had occasion to supply teach in our local schools so we had to be on good behaviour; that’s just how it was. In primary and elementary, I was the only girl with mobility challenges; an older boy who attended the Catholic Church, as my family did, lived with a polio-like condition that featured intellectual delays. He would drop in to school from time to time for
the socialization. There were other older high school students who lived with disability but there was never a hint of bullying. We were a part of the community and that’s  the way it was. 

In grade 12, according to his Dad, “Jesse was in the Coop class with another dozen students, assigned to do his placement at the Nashwaak Villa assisting the Activities Director. After graduation,  we approached Jobs Unlimited to see what they could offer Jesse.  They took him under their wing and continued his placement at the Villa.  Jobs Unlimited hired someone to work with Jesse for a few months, assisting him with routines, and other skills. Currently, Jesse gets a few days each month working at the facility and is a much loved part of the elder care support team. And best of all, Jesse loves his time at the Villa.”

I’m pleased to know that Jesse is doing so well, as he gets on with living in spite of challenges. When I read that he was nominated for the Planetree Scholar Award and flew to Boston in October to accept it, I was so pleased for him and for his family.  His father proudly shared that, in 2015, Jesse was honored by the Third Age Centre with the "George Wakeling Award Honourable Mention" for his volunteerism at the Villa.

Jesse is an example of a young man who wasn’t a bully target in school. How adults in their world handle things from the outset determine the smoothness of the path, as young people with challenges move through the milestones of their lives. Jesse, with a supportive network of family and friends, had all the ducks lined up from the moment he ventured out into the world.


Carla MacInnis Rockwell is a freelance writer and disability rights advocate living outside Fredericton, NB with her aging Australian silky terrier and a rambunctious Maltese. She can be reached via email at carmacrockwell@xplornet.ca